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Paul Frase was an NFL defensive lineman; Alison Rockett was an assistant manager for Guns N’ Roses and a personal assistant to fashion design mogul Max Azria, founder of BCBG.
Their first child, Joshua, was born with a muscular disorder called myotubular myopathy (MTM). The doctors would not give him more than 24 hours to live.
Alison became Joshua’s advocate immediately.
Before Joshua had his first birthday, Alison and her husband, Paul, started a foundation to search for a cure for their son’s disease.
Alison has since been published in Human Gene Therapy and was featured in the MIT Technology Review. Alison forged relationships with MDA, NIH, NORD and Global Genes during the Joshua Frase Foundation’s quest for a cure for MTM. Paul and the family were featured in USA Today during the week of Super Bowl 32, when he was a member of the Green Bay Packers squad.
Paul and Alison have been interviewed by Jerry Lee Lewis of the MDA Telethon, Jeremy Schaap on The Sporting Life, and countless other television and radio personalities and broadcasts. Paul also has been on Fox and Friends to promote the foundation.
Paul played for eleven seasons (from 1988 to 1998) with the New York Jets, Jacksonville Jaguars, Green Bay Packers, and Baltimore Ravens. He is the unprecedented two-time recipient of the Ed Block Courage award, a peer selected honor that identifies a team player who exemplifies commitment to the principles of sportsmanship and courage.
Please visit us at www.joshuafrase.org.
Reviewed by Philip Van Heusen for Readers' Favorite
Game Changer is the heart-wrenching, gut-twisting drama that is the life of the Frase family. Paul Frase and Alison Rockett are the loving parents of Joshua Miles Frase. Joshua has a rare genetic disorder. He is differently-abled, but this did not stop his parents from launching into action to find a cure for Myotubular Myopathy (MTM). In the shadow of this spell-binding journey, one can see the hand of God working out the details. When Joshua was born, he scored zero on the Apgar assessment. Only parents who have stood where Paul and Alison found themselves will fully understand the implications. But Joshua finally had a diagnosis. I have been in those shoes, and this book is both amazing and eye-opening. Alison and Paul open their hearts and let the reader see inside while feeling the pain and excitement.
Having a differently-abled child may result in the loss of many dreams, but the love it brings more than makes up for any loss. “Grief, in the world of special needs, is an ongoing reality.” Paul Frase and Alison Rockett understand that God is sovereign. They share their deeply held belief in the Almighty in Game Changer. This book is an emotionally moving testimony to the courage and strength parents of differently-abled children often exhibit. It is written in a friendly manner, making the reader feel as if they are sitting in the den with Paul and Alison, just chatting about how their life was changed. This became a blessing for others because of the research they initiated in the hope of a cure for Joshua. Read through to the exciting end and see what can be accomplished when parents do their part. When doctors give parents no hope, it is time to find hope in Jesus Christ.
