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Carol B. Amos was a caregiver for her mother who lived with dementia for over 11 years. Her caregiving journey began when she and her brothers noticed a decline in their mother's ability to manage her affairs. They worked relentlessly with their mother’s doctors to receive the devastating Alzheimer’s diagnosis. They hired community resources to help maintain her independence. They eventually moved her to assisted living near her Cleveland home and a year later to memory care in Wilmington, DE to be close to Carol.
When Carol shared caregiving advice or tips with caregivers, it helped them tremendously. She began documenting her thoughts, learnings, and ideas. After her mother's death, she debated whether to publish “H.O.P.E. for the Alzheimer’s Journey: Help, Organization, Preparation, and Education for the Road Ahead.” Her mother was a private person and this was her story. Because her mother believed in helping others, Carol knew her mother would approve of her helping other caregivers along their difficult journey. Carol continues to immerse herself in Alzheimer’s education by reading, attending conferences, and becoming a CARES Dementia Specialist. Her caregiver tips, tools, advice, and information make the journey for Alzheimer’s caregivers less stressful and more rewarding. She inspires caregivers as she shares her message of H.O.P.E. (as the book is affectionately called) at conferences, senior facilities, churches, and workplaces. Carol also works to help eliminate Alzheimer’s disease as an Alzheimer’s Association advocate, volunteer, and fundraiser.
Reviewed by Ruffina Oserio for Readers' Favorite
In the introduction to H.O.P.E. for the Alzheimer’s Journey: Help, Organization, Preparation, and Education for the Road Ahead, Carol B. Amos states: “My brothers and I were devastated when our mother began displaying signs of Alzheimer's disease, also referred to as Alzheimer's. We became part of the estimated ten million unpaid family members caring for a person with Alzheimer's in the United States.” Thus began her journey in search of understanding what comes with the condition, a journey which took her to support groups, workshops, to eventually becoming a CARES Dementia Specialist. This book documents what the author has learned along the way, offering readers and caregivers to patients of Alzheimer’s the knowledge, wisdom, and the tools they need to make the journey less painful and more meaningful.
Carol isn’t just a wise and wonderful person, but also a great communicator, a woman who has learned tons from experience and has amassed a wealth of knowledge. She possesses the gift of communicating that knowledge in language that is accessible and in a voice that is both empathic and compassionate. In this book, readers will find a heart-to-heart conversation with readers looking for help in dealing with patients with Alzheimer’s. The use of the epistolary style in this book also makes its message intimate and more compelling. H.O.P.E. for the Alzheimer’s Journey is a great tool, a handbook that everyone with a parent or a family member having memory problems should read. It’s packed with information, insights, and actionable steps to transform the caregiving experience into one that enriches both the lives of the caregiver and the patient.
